April 30, 2024
No Comments
Patient-reported outcomes (PRO) are developed by pulling key data points from cancer journey stories, that are then combined with empirical evidence to develop playbooks for future cancer patients. We invite you to use your experience to become a beacon of hope!
Patient-Reported Outcomes (PROs): Gathering information directly from cancer patients about their experiences, symptoms, and outcomes is a crucial first step. This data is typically collected through surveys or interviews, allowing individuals to share their perspectives on various aspects of their cancer journey.
Data Analysis: Once patient-reported outcomes are collected, a thorough analysis is conducted to identify key data points. This may include information on symptoms, treatment experiences, side effects, lifestyle changes, and overall quality of life.
Empirical Evidence: Integrating empirical evidence involves incorporating scientific research, clinical studies, and evidence-based practices into the playbook. This ensures that the recommendations provided are grounded in scientific rigor and align with established medical knowledge.
Playbook Development: Based on the analyzed patient-reported outcomes and empirical evidence, a playbook is developed.
Tailored Recommendations: The playbooks are designed to be personalized and adaptable, recognizing the individuality of each cancer patient’s experience. Recommendations may cover a range of topics, such as treatment adherence, symptom management, emotional well-being, and lifestyle adjustments.
Iterative Process: The development of playbooks is an iterative process, where feedback from cancer survivors and ongoing research contribute to continuous improvement and updates.
Accessibility: Ensuring that the playbooks are easily accessible to cancer patients is crucial. Each playbook is different, so it is critical that you select the playbook for your type of cancer.
Education and Support: In addition to providing practical recommendations, the playbooks may offer educational resources and emotional support to help cancer patients navigate their journey more effectively.
Welcome to the PRO Hub, a safe community to connect with cancer survivors and an opportunity to use your journey to help future cancer patients. Your story is critical and we are thankful you have found us!
Your story matters! And we are honored to help use it in the fight against cancer! We recommend taking our Share Your Story Survey, however we are happy to analyze your story in any form provided.
Patient-reported outcomes (PRO) are developed by pulling key data points from cancer journey stories, that are then combined with empirical evidence to develop playbooks for future cancer patients. We invite you to use your experience to become a beacon of hope! Our current database contains PROs with increased quality of life based on these interventions: Cannabis, Nutrition, Exercise,
Join one of our challenges designed to Increase Quality of Life. For each challenge you will be asked to complete an entry survey, followed by weekly surveys and lastly an evaluation survey. The data collected from these stories are also patient-reported outcomes, and can be used to help increase the quality of our playbooks.